I decided to title this “Straight from the Horses Mouth” just to get things straight and in the open. The game of “telephone” gets played really well in my family and thing ALWAYS get out of hand and misinterpreted. I was also thinking about posting this on my My Space page but not everyone has one. So this is a way for everyone to know whats going on “Straight from the Horses Mouth”


Last Wednesday Andrew had a surgery on his penis called a Chordee repair. A Chordee is where there is more skin on the top and it is a little webbed underneath. So they had to separate it and pull the extra skin down and stitch it up. He also got circumcised that is part of the procedure. If he didn’t get this done he would have erections and sexual difficulties later. It was an outpatient procedure.


Andrew has had a lot of other issues that we have been dealing with one at a time. One of these issues is his physical delays. He is 8 ½ months old and he does not sit on his own. He can not get in to the sitting position on his own and when we do put him in it he will fall over and hit his head. He has not gotten the reflex to catch him self if he does fall. Especially to the back and sides. He is slowly figuring out how to get him self out of the sitting position by going forward and not falling. He does not crawl but man can he army crawl FAST. He favors one side over the other. We will be starting Physical Therapy soon (I hope, insurance issues).


He also has some feeding/swallowing issues and has since birth. We will be getting evaluated by a Occupational Therapist to see if they can help. He had a head Ultra Sound done in May and will be having a MRI in November.


The biggest thing is we saw a Genetic Dr. on Friday. She seamed very nice and spent over an hour with us. We decided to do some more testing to try and rule out a few more things. She did say some time we don’t find out what is wrong with the kids and to try not to get to discouraged. Some of the things we are testing for right now are Metabolic Disorders, Bone Disorders and two other things. The first being Fragile X and the other Coffin-Lowery Syndrome. Both being forms of retardation. So we headed off to get a full body x-ray for the bone disorders, urine and blood for the metabolic disorders and blood for the other two. We will start seeing results from the testing with in three weeks minimum. We go back to see her in eight weeks. She did say that if something did come up on one of the tests we will be seen that day to discuss further options and treatments.


I will up date this blog as soon as the information becomes available to do so. Please check back often.