No more summer fun....

So things around her are winding up for the summer. Our schedules are back in to full swing. Owen started the first grade and is in school 9-3:40 four day and 9-2:30 on one day.He is also in soccer 3 times a week and he wants to go back to gymnastics once a week. Audrey is in pre-school 9-12 for two days and gymnastics on  one day. We cant for get Andrew. He is in therapy 3 x's a week and p/t every other week. We will soon be getting an evaluation for speech so that will add one more day into the mix. 

Speaking of Andrew, I took him in for a weight check yesterday and he was up to 19.9. He did just eat so i will call it 19.5. So he is on the gaining upswing. Lets hope he keeps it up. Our goal is to break 20 lbs. 

Strangers are starting to notice his smallness. We were at IHOP the other night and some lady cam up to him said the normal "Oh he is so cute" and then she said,  "What is he about 10 months?" I looks at her and said no he is 18 months and she didn't say any more and left. I am not quite sure how I feel about that yet. Having to answer questions. 

Any way I hope you are all well and had a great summer. Play time is OVER!

Down Hill

So Andrew's weight is slipping again. He was 19.3 a week ago and yesterday he was 18.13. Not good. The good thing is that it FINELY got the attention of his GI doctor and she sent him to the lab for some tests. She had some many boxes checked, they took the max amount of blood you can take from a person of his age and weight. So we will go back and see her in two weeks or sooner if the results show something. Here is a picture to show you how skinny he is getting.

What a few weeks!!!!

Oh my have we ever been busy. It started 2 weeks ago when Owen got sick and then with in a half hour of putting the other two to bed Audrey calls me in her room and she had vomited raman noodles all over her. It looked like someone threw them at her. Travis is giving her a bath and I am cleaning up her bed and Andrew starts throwing up so we put him in the tub and I am cleaning his bed. I hear Travis calling me into the bathroom because Andrew is throwing up ON Audrey. We get them all cleand back up and in bed I go and check on Owen and he threw up all over my bed. So another bath and bed changed. Andrew dry heaved all night so we left him alone but the other two I put a blanket over the couch and they slept there with me in the chair. Till abour 330am if one wasn't throwing up the other was. It was like my house was porlturgisted. They decided to share the flu with me on Wednesday thru Friday. The kids are feeling better but Andrew remains sick. This Monday I brought him to the dr.'s and i finley got his GI dr to listen to me. She had a thearoy and after one x-ray and 4 hours she was right. He was so constipaited that it was pushing up on his tummy and preventing food from going down and forcing it to come up and out. So we gave him a laxitive and nothing. The next day another laxitive, nothing. Today he pooped. About dang time. He is dehydraited and we are trying to keep fluids in him to avoid the hospital. We are to go and see the GI dr again tomorrow and see if we have kept him hydraited enough. If no you know where you can fine me.

On a side note, I called the Genetics Dr to see if any of the results have come in and she said yes that they all have. Drum roll please....................................The micro array came back neg YEAH and the Coffin Lowery also came back neg. Why that doest get a YEAH? She said that the gene for CLS doesn't like to "show it's self" and that it could be a false neg. So we will get re-evaluated with her and she still might give him that diagnosis ut the good thing is in a few years he may "out grow" these symptoms and have the diagnosis removed where as if the test was positive he has it for life. So we are not out of the woods with CLS but the chances have greatly reduced with both of those tests being negative.

Here are a couple of pictures of him on his horse from tonight ENJOY!