Here are a couple pictures of my big boy STANDING!!! Yeah Andrew!!! He is still not sure what to do when he gets there but he is getting there!

halloween

As of today there are still no test results back yet. We did have a blast on Halloween. Andrew was a Scarecrow. His hair matched his costume perfectly. He did only score one piece of candy from the neighbors. He slept most of the time. He is coming down with a little cold so I know he wasn’t feeling up to par. The other kids had a blast running door to door. Owen is already asking when is Halloween again and already thinking about his costume for next year.


Thanks for checking in!

crazy kid

OK so the kid who can not sit on his own and who can not crawl proper is pulling himself up to stand. Yes, that is right the little bugger can pull himself up. When he gets there he doesn’t know what to do. He will either get really frustrated and cry until I rescue him and help him down of he will fall and hit his head. The one bad thing about him standing is the falling. He still does not really have the reflex to catch him self with his arms so he just falls and falls hard. So I am taking that as a good sign.


As for test results, nothing has come in yet. We are still playing the waiting game.

mri today

Andrew had his MRI today and it was one of the longest days so far. We got to the imaging center at 7:30 in the morning and our appointment was at 9 am. The Anesthesiologist got there at 8:45. After 7 attempts to put an IV in him we decided the best thing was to use gas and then find the IV later. So it was off to the hospital to get admitted. At this point Andrew is so upset from hunger and being poked 7 times he is screaming. We go to the surgical ward and wait for another hour because out time for the MRI machine had come and gone. So now it is 11 am and we head back to the MRI center where they begin the scan. The whole scan took 45 minutes and the
Nurse said they got some good images. We had to go back into the hospital to the post surgical ward and wait for the drugs to wear off. That only took about 15 minutes because they kept him in more of a twilight state vs. fully under. So our day that should have only been a few hours took 6 hours. So now we wait……..

mission impossiable

So how do you collect urine from an 8 month old??? I have no clue. The advice we were given from the lab tech was to put his feet in warm water and it would come naturally. Well tried and imagine poor Andrew naked in the kitchen sink Travis is holding him up. We have a bowl of warm water so he can put his hands in it also (help things along) and I am holding the lab cup over his penis waiting for him. We waited for about ten minutes before we gave up. So we will have to try again tomorrow. If not I will have to take him to the lab to have a bag attached and wait until goes then get it that way. AAAGGHHH another trip downtown!

mri

The imaging place called and said they had some cancellations and with his age and diagnosis code she can get him in this Friday. So we get to be at the hospital again at 7:30 for a 9 am MRI. That is one more thing off our list.

awsome news

I just got the call and with all the insurance mix ups his formula is still covered. They were able to get it covered for one year!!!! This is very exciting considering it is $50.00 for a 14oz can of powder. It is nice to get good news every once in a while.