Andrew is wishing everyone a happy and safe holiday

Early intervention

He did quilfy due to 33% delay in gross motor and communatuin skills. He is 10 months old and Language is comming in at 5.5-7 months Cognitive in at 7-8.5 months and his social at 8.5-10 months. Our plan is PT 30x's over the next 6 months, OT evaluation and do as they recommend and a Infant Specialist evaluation and do as they recommend. So again we wait and she said with X-mas comming up it may take a few weeks to get the PT started. But Yeah they will cover it!!!

mission complete

So today we finely got his urine sample in. After many calls to his Genetic Dr.asking for the lab slip the called me back yesterday and said the sent it over. So today we went and the taped a bag to his privets, and slit a hole in his diaper and pulled the bag thru. It was kind of funny looking. It took all of about 30 minutes and we were done. He actually did really good getting the tape removed from his “goods”. So we wait…….

p/t

he Regional Center called again and they said they can't use the evaluation he had in September. That evaluation was geared more to medical reasons and they need it more towards his capabilites. So when they come out on December she will bring her own P/T and they will re evaluate him here. Fingers crossed.

another appointment

He saw his gastro Dr today and she was happy with his growth so far. She said any less she would have been concerned. on average he is gaining 10 grams a day. This is on a full 27 calorie per oz formula 3-4x days and 3-4 jars of stage 2 or 3 food. the bottels are 6-8 each. He is in the 0.9% for height and 2.2% for weight and 50% height weight ratio. We can not dilute his formula any more because he is useing every calorie he gats and any thicker there is not enough water for him and he gets really constapated.
We also got a call from Alta California Reg. Center today and they are comming out to do a home evaluation on Dec. 5th to see where to go. He is 9.5 months old and for him to qulify he needs to be 1/3 behind. So at 6-7 month old abalities. Which his ped said he was on Monday when we saw her. We are still waiting for P/T and O/T.we had the eval in sept and have not even started yet. AHHHHGGG!!

We are home from Disneyland . We had a really good time. It was nice to get away from it all for a few days.

Well since being home for only two days we have a lot to fill in. I will give the condensed version.

~ First the MRI came back clean. They only thing they found was he had inflamed sinuses and so we treated for a sinus infection.
~Second he had his 9 month check up and his weight is 16 lbs 7 oz and 26 inches tall. That puts him at .9% for height and 2.2% for height.
~Third he is still behind physically. He is physically at a 6-7 month old.
~Fourth we are still tring to get into P/T and O/T. We are trying to get into Alta California Regional Center . They offer free P/T and O/T to qualified children.
~And lastly he has an appointment with the Gastro. Dr. tomorrow. So we will see what she says.


Here are a couple pictures from this weekend.

a break from it all

We are heading out on a family vacation to Disneyland. We are really excited to go and have a good time. To have a weekend of normalcy. When we do get home we have two doctors appointmants next week. The first is with his normal ped. and the second is with the gastro doctor. I will post updates when we get back