well we did it

We cut his hair!!!! Here is my future rock star!!

OT Evaluation

Andrew had his OT evaluation today. She too recommends therapy for him. So we will be including OT once a week. She wants to work with his balance and his fine motor skills. So hopefully with all of this we should start seeing some improvements soon.

The therapies started

Andrew had his day with the Infant Development Specialist (ID) today. He did really well with her. She is working with him thru play therapy and cause and effect. We are also starting to introduce sign language to him. Today we introduced “no” “ball” “more” and “all done”. She showed me how to do them with him. She did suggest that we get his hearing evaluated. He tends to put his head on the toy that is playing music and she said that could explain why he growls. She said it could be his way of hearing himself. Also when he pounds toys he will put his cheek on the toy/object to feel the vibrations. So I called his pediatrician and our coordinator at Alta to see who will do the evaluation.


The Physical Therapist (PT) called today and we are scheduled for Fridays starting next week. This Friday we have the evaluation with the Occupational Therapist (OT).


No news on the blood test for the Coffin-Lowry Syndrome (CLS). Still waiting.

Merry christmas to me

got the best gift in the world this Christmas. Andrew has started to crawl on all fours. It was the most wonderful sight to see.

Its starting

Ok we got approved for the PT and the Infant development (ID) The ID lady called today and scheduled his weekley thearpy for wednesdays. Then it just hit me WOW this is really happening and holy SH*T here we go. I felt like i wanted to vomit after i hung up the phone. I asked how long are we approved for and she said "well this can go on till he is three so just plan on for a while" It is just all really starting to hit now that every thing is starting go finley go foward.


Sarah

another evaluation

today was with the infant development. She said she got him at a solid 6 months and he is 10.5 months. she said some skills are 3-6 and some 6-9 with a majority at 6 months. She will be comming once a week and will work with him on the cognitive things and some speech. she said she will also start teaching him some sign language to help him communacite better. so we are now PT once week and ID once a week. We get the OT eval after the first of the year.

Update

We saw the Genetics doctor yesterday and here is the verdict. The metabolic panel came back negative, the skeletal disorders came back negative and the Fragile X also came back negative. So we are now doing the “million dollar” test. We are doing a gene specific for Coffin-Lowry Syndrome. She still is leaning toward that because of all the physical attributes he possesses. So I will take him in Monday and have blood drawn and it will take 10-14 working days for results.


His physical therapist called and she is scheduling after the new year so she will call back and we will start after the first.