OMG!

I was supposed to go and see the genetics doctor today and about 10 mins before i was to leave and they called me. She told me that the results of the genetics test has NOT COME BACK YET!! She told me 7-10 buss. day and we are now on 10 weeks!! So I thought we were out of the woods but we are not yet!!!

So we now have O/T started. We had our second day of it today. She said he did really well today. Audrey and i stayed out of the room so that is why he did good. We got the ok to schedule his Neurology and Ortho apps. so we will see the Neuro dr on Tuesday next week. Fingers crossed he does well there. The Dr. I think he will really benifit from is Ortho. If we can get his leg braced and some proper shoes I think we will have a walker in no time.

Sarah

A few more appts out of the way

On Valentines Day we had alot of appointments. Or day started at 7 in the morning with the hearing dr. Andrew did great. He passed. He even heard two more than I did. Then we rushed home to get Audrey to the eye dr and then back home to get Owen and Andrew for their turn with the eye dr. Over all Andrews eyes are healthy. She saw no health conserens for his eyes. She did say that Andrew and Audrey will more than likley need glasses in a few years. Owen also passed but she did see a mild lazy eye and we will follow up with that in a year. If it not better then we will start eye thearpy with him.

Andrew did come down with an ear infection on Friday so we are on another round of anitbiotics for him. We go back today to get him rechecked. Fingers crossed it is gone.

1 yr check up

Andrew had his one year check up today. The visit went really well. There was one step forward. The Doctor was happy that she had not seen him in about three months. That was our largest stretch not seeing her. Now for the stats. He weighed 18 lbs 1.5 oz which puts him at 1.5% on the growth chart and he was 28 inches which put him at 10%. We re-measured him two times because we didn’t believe that he grew that much. This was the most he has ever been on the chart. He got four shots and did really well with them. He only cried for a little bit. Now for the two steps back. She too is concerned about his right foot and the lack of control he has in his feet and legs. He has the strength to stand just having a hard time controlling the position of his foot. His arms also turn in when he crawls. He looks like a bull dog with bowed arms. So we are off to see an Orthopedist and a Neurologist. The Orthopedist will let us know if we need to brace his foot and if he can think of any underlying conditions that could be causing issues and the Neurologist will let us know if there is a delay in his brain telling his feet what to do. So we add two more doctors to our ever growing list of specialist.

Happy Birthday Andrew

Andrew had his first bithday on the sixth. We celebrated by having a little party over the weekend. He got alotof nice things and seemed to enjoy himself. We had his Uriologist appointment lastweek and it went good. They did an ultrasound on his kidneys. They showed that his left kidney is perfect and the right is almost bact to normal. He said it looked a million times better than the day he was born. It did show that his urters ( the tubes that go from the kidneys to the bladder) on his right side are still enlarged. The Dr. said since he has not had an infection since we took him off his meds in May we are not going to put him back on. So we go back in one year to continue follow up care unless he gets a UTI then we will go from there.

His ID theapry is going great. He really like his thearpist and i can see him improving. P/T is another story. He does not like to do the work with her and he is always trying to get away from her. We have noticed over the last few weeks that his right foot turns out 90 degrees when her tries to cruise so we are going to try taping his foot and try and straighten him up that way.

We have not started O/T yet we are still waiting for approval. Still no news is good news on the CLS. I have not heard a yes or no on that test even tho I have called over there 3x's and left messages for them to call me back.

t has been a while so here we go. Andrew had a dentist appointment and he along with the other two are cavitiy free!! Andrew has a U/S on his kidneys today along with a follow up with the Uriologist. So hopefully we can cross one doctor off our list. We have not started O/T yet we are still waiting on that. On the advice of his two therapist we are seeing a hearing doctor. He will get his hearing evaluated because he still growls alot to talk. They will also check for any inner ear deformaties and vestibular disorders because he hates to sit up and he does not do well on the ball. That is scheduled for mid Feb. While we are focused on the head I got him along with the other two all scheduled for eye exams in mid Feb also. I dont forsee any issues there it is just a check up. Andrew will be one next week. It has been a rough ride so far. Hopefully this next year will be smoother.

p/t

Andrew started his P/T on Friday. He did OK. I don't think he will like her as much as the the I/D gal. She plays with him and the P/T makes him work. He got cranky pretty early on with her. He really didn't like the ball she made him sit on. He didn't like it at the O/T evaluation either. So we will see how it goes.