Good and Bad news

So we will start with the bad. I am 99% sure his reflux is back. He has been avoiding food, holding it in his mouth and not swallowing and when he does get it down most of the time shortly after he will throw it up. So we are waiting for our referral from Kaiser to see their GI Dr.  We also have a appointment with ENT to get his tonsils and adenoids checked. He is a mouth  breather and a very loud snorer. Also we are getting a second opinion on his tongue tie. Both his feeding therapist and his speech therapist believe it would benefit him to have it clipped now and not later.

So now the good. At speech today he started to put two words together!!!! Yeah!!! His one words have increased to about 35-45 words that mostly I can understand depending on the way he says them. But today he said  "bebe baba" (baby bottle), "bebe ni-ni" (baby night night) and "mama ba" (grandma bath). When he did that his therapist and I both stopped and looked at each other like, did he just do that? So we are making progress. 

Here is a picture of him from the other day. Enjoy.

Wow it has been a while since I last posted a update on Andrew. So Sorry!!! We have been VERY busy with all the kids. Andrew is doing WONDERFUL!! He is improving everyday. His understanding is incredible. I am finding his biggest delay is still in his expressive communication.  His sign language is improving everyday. He had a new genetics appointment with Kaiser last week. I feel it went really well. This new Dr. isn't as sure as the other Dr. that he has Coffin-Lowry. He wouldn't tell me what he thought it was but he was going to do some research. He also had another audiology appointment and so far it was good. He was too upset to finish the test so we rescheduled it. That is is for now I will update more with pictures later.

 

Still Sick

So I took Andrew back to the Dr.'s today. I didn't like the way he was breathing. This new Dr agreed that he was fighting to breath and said to give him the inhaler 2 x's every hour for 4 hours. She also informed me that he has a mild ear infection in his right ear and proceeded to get a prescription for antibiotics. Oh I hope that his tummy is some what better that he can handle them this time. He is sleeping now and I am enjoying the cuddle time with him I just hope he gets better soon.

 

My baby is sick.....

Thanks to beautiful Miss. Audrey, Andrew is now sick. Audrey brought home croup last week and went to the ER because she was having trouble breathing. I got her all better (somewhat) and now Andrew is sick. He has had a fever on and off for three days now with a really runny nose and a cough. I am kind of enjoying it because he want to cuddle with me when he doesn't feel good. On a good day I have to fight him for a hug. I hope he gets better soon......

Happy Birthday Andrew

Today my baby turned two. My birthday wish for you dear Andrew is to continue to be strong. We all love you very much and we will not stop helping you to be the best you can be. You are my inspiration. You have shown me how patient and understanding I can be. You are my miracle and I love you with all my heart.  

Urology

Andrew had his one year follow up appointment with the Urology clinic the other day. This was to follow up on the kidney reflux from birth. The kidney had healed it's self by his first birthday and at that time his ureters were still enlarged. So he had a ultra sound and every thing was with in normal range. We talked with the doctor and we are going to do yearly ultrasounds and visits. They think one more all clear next year and we will be done with Urology. So besides the fact we had to wait two hours for hte doctor I guess it was worth the wait to hear everything is good.

Happy New Year.

I hope every one had a Happy New Year!! We are excited for all the things to come here in our house. Andrew will be turning 2, Audrey will be 4 and Owen is approaching 7. Yikes! We are looking forward to Owen and Audrey starting T-Ball in March and Andrew to continue with all of his therapies. We have officially be in therapy for a year now. We had his one year review in December and we are continuing with all current services. He had a evaluation with his infant teacher and here are some of her results

Development area        Level in May                              Level in Dec


Personal Social   12 mo. age                12-15 age


Cognition 6-9 with some 12 12-15 age

Communication 6-9 9-12 with some 15


Fine Motor 6-9 with some 12 12-15


Gross Motor 9-12 with some 15 15-18 with some 18-21

We are seeing lots of improvements and look forward to seeing more.